Patient Resources

Here are a collection of organizations, educational resources and reference services that some patients have found to be useful. This list is by no means inclusive and is only provided as some potential informational resources.

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Topic	Contact Information
Search Engines	http://www.google.com/ http://www.altavista.com/ http://www.lycos.com/

General Medical Information	Medline http://www.ncbi.nlm.nih.gov/PubMed/ Medscape http://www.medscape.com/ U.S. National Library of Medicine http://www.nlm.nih.gov/ National Health Information Center http://www.health.gov/nhic/ Healthfinder http://www.healthfinder.gov/ Agency for Healthcare Research Quality http://www.ahrq.gov/ National Guidelines Clearinghouse http://www.guideline.gov/

General Neuro-Related Information	Neuro:// On-Call (American Association of Neurological Surgeons) http://www.neurosurgery.org/ American Academy of Neurologists http://www.aan.com/public/index.cfm National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/ Society for Neurosciences http://web.sfn.org/ American Academy of Neurological and Orthopedic Surgeons http://www.aanos.org/

Alzheimer's Disease	Alzheimer's Association http://www.alz.org/ Telephone: 1-800-272-3900

Aneurysms and AVMs	Aneurysm and AVM Support Group http://www.westga.edu/~wmaples/aneurysm.html

Aphasia	Academy of Aphasia http://www.academyofaphasia.org/ Telephone: 1-925-372-2670 National Aphasia Association http://www.aphasia.org/ Telephone: 1-800-922-4622

Back Care	American Academy of Orthopedic Surgeons http://www.aaos.org/wordhtml/home2.htm Telephone: 1-800-346-AAOS American Academy of Physical Medicine and Rehabilitation Physicians http://www.aapmr.org/ American Chiropractic Association http://www.amerchiro.org/ Telephone: 1-800-986-4636 National Institute of Arthritis and Musculoskeletal and Skin Disease http://www.niams.nih.gov/ Telephone: 1-877-22-NIAMS

Brain Tumor Resources	National Brain Tumor Foundation http://www.braintumor.org/ Telephone: 1-800-934-CURE The Brain Tumor Society http://www.tbts.org/ Telephone: 1-800-770-8287 American Brain Tumor Association http://www.abta.org/ Telephone: 1-800-886-2282 The Children's Brain Tumor Foundation http://www.childhoodbraintumor.org/ Telephone: 1-977-217-4166 Acoustic Neuroma Association http://anausa.org/ Telephone: 1-770-205-8211

Cancer	American Cancer Society http://www.cancer.org/ Telephone: 1-800-ACS-2345 Cancer Information Service http://cis.nci.nih.gov/ Telephone: 1-800-4-cancer

Caregiver Support	http://www.wellspouse.org/ Telephone: 1-800-838-0879

Clinical Trials	National Institute of Health http://www.cc.nih.gov/ National Institute of Health Information Center: Patient Recruitment and Public Liaison Office http://www.cc.nih.gov/ccc/prpl/index.html Telephone: 1-800-411-1222 National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/ Brain Tumor Trials http://www.virtualtrials.com/ Society for Women's Health Research http://www.womens-health.org/ Telephone: 1-202-223-8224 National Organization of Rare Disorders http://www.rarediseases.org/

Epilepsy Information	The Epilepsy Foundation http://www.epilepsyfoundation.org/ Telephone: 1-800-332-1000

Grief	Compassionate Friends (Grief Support after loss of child) http://www.compassionatefriends.org/ Telephone: 1-800-969-0010

Head Injury Resources	Brain Injury Association of America http://www.biausa.org/ Telephone: 1-703-761-0750 ThinkFirst http://www.thinkfirst.org/ The International Brain Injury Association http://www.internationalbrain.org/

Headache	American Council for Headache Education http://www.achenet.org/ National Headache Foundation http://www.headaches.org/ M.A.G.N.U.M (Migraines) http://www.migraines.org/

Pain Resources	The American Pain Foundation http://www.painfoundation.org/ The American Chronic Pain Foundation http://www.theacpa.org/ The American Academy of Pain Management http://www.aapainmanage.org/

Parkinson's Disease/Tremors	National Parkinson Foundation http://www.parkinson.org/ Telephone: 1-800-327-4545 American Parkinson's Disease Association http://www.apdaparkinson.org/ Telephone: 1-888-400-2732 Coping with Essential Tremor http://www.essentialtremor.org/

Practitioner Databanks	National Practitioner Databank http://www.npdb-hipdb.com/ American Medical Association Physician Select http://www.ama-assn.org/aps/amahg.htm

Spinal Cord Injury	American Spinal Cord Injury Association http://www.asia-spinalinjury.org/ Telephone: 1-404-355-9772 National Rehabilitation Information Center for Independence http://www.naric.com/ American Paraplegia Society http://www.apssci.org/

Stroke	The Brain Matters http://www.thebrainmatters.org/ National Stroke Association http://www.stroke.org/ American Stroke Association http://www.strokeassociation.org American Heart Association http://www.americanheart.org/

Trigeminal Neuralgia	The Trigeminal Neuralgia Association http://www.tna-support.org/

Wellness	National Wellness Institute http://www.nationalwellness.org/